Our Story- Saschan (Co-Founder)

I first became aware that something was wrong when I started to gain weight in November 2010. My first response was to cut down what I was eating and exercise more but the weight continued to gradually pile on! In December 2010 I had a mirena coil fitted by my GP resulting in pelvic inflammatory disease, which if left untreated for a prolonged period of time can result in infertility and can even be fatal in some cases.

After several trips to several different A and E departments from London to Liverpool and some inbetween, suffering with extreme abdominal pain I was given a course of 2 antibiotics. Despite this I continued gaining weight and continued  having increasingly painful abdominal cramps and sharp shooting pains in my left ovary, so I went back to my GP. She was thankfully very understanding and referred me to the Liverpool Women’s hospital for an ultrasound. The results of my ultrasound arrived a few days later and I was called into my doctors’ office where she told me that the ultrasound had detected a cyst on my right ovary of an unusually large size for someone my age.

Tummy March/April 2011

Anyway after a consultation with an advanced practitioner and a bunch of blood tests they confirmed that my cyst was 21 X 24 X 19 cm, to show you how large that is take a 30cm ruler and have a look. So after a chat about my options it was decided that surgery to remove the cyst was my only option. After 4 weeks of waiting, several trips to A & E and a lot of time in chronic pain I followed some good advice and booked an appointment with a private gynaecologist.

I went for my appointment, she took one look at  the medical information I had taken with me and said “ Well! That definitely has to come out doesn’t it?!” and proceeded to book my surgery for the following Wednesday.  She talked me through the type of incision they would make and how the scarring could look and she explained that there was a small possibility that i would come round from my surgery one ovary down.

The day after surgery a member of the surgical team came to see me, he told me that my operation had been a success but due to the extensive damage that the cyst had placed on my reproductive system they had had to remove the majority of

Me In Hospital
After Surgery

my right ovary and fallopian tube. They had checked the left ovary and tube and my womb and they were perfectly healthy. My gynaecologist later told me that they had drained nearly 4 litres of fluid from my cyst and had also

After Surgery

discovered a  teratoma( an encapsulated tumor with tissue or organ components resembling normal derivatives of all three germ layers) . The type of teratoma I had was a dermoid cyst, (a mature teratoma which contained teeth, hair, and fatty deposits) within the ovary itself. She said I would still be able to conceive but would have to go back for tests at 6 and 12 months and then regularly after that to make sure that another cyst had not appeared on my left ovary.

Recovery has (at the time of writing) taken over 5  months and there are still some days when I have discomfort and pain, my scar is healing, albeit slowly, and I am gradually getting back to my normal everyday life although I have recently received news that a cyst has started to grow on my remaining ovary.

My Scar Now

Comments

  1. steph phillips says:

    I had a dermoid cyst on my left ovary back in 2007 and it was only discovered by chance when I had an emergency c section with my daughter I had signs during my pregnancy that I now know of but didn’think of it back then as just thought it was pregnancy cramp . My left ovary and falopian tube were removed and was told I may not conceive again naturally but in 2009 I gave birth to my son through natural conception so would like to say that there is hope ladies and wish u all luck xx:-)

  2. It’s a pity you don’t have a donate button! I’d definitely donate to this superb blog! I suppose for now i’ll settle for book-marking and adding your RSS feed to my Google account. I look forward to brand new updates and will talk about this blog with my Facebook group. Chat soon!

  3. Was the marena coil the cause of your problem?

    I had one fitted about 34weeks ago and realised it had disappeared about 6weeks ago. Had a few uss and xrays nothing. I am experiencing some sharp shooting pains in my lower abdoman which pain killers not helping. When this pain starts i have to grab on something and squeeze very hard until it goes. My Gp gave medication to help relax my muscle but no defference. Do you think it could be the samething? Should i go private?

    • Hi apologies for the late reply we have been very busy sorting out the new website and some up coming events!

      In response to your question it was not the mirena coil which caused my problems It seems as though they were underlying for an unknown period of time. However the coil aggravated the cyst which was already present, causing it to grow rapidly. In many ways having the coil fitted was my silver lining as it saved my life, if the teratoma had continued to grow it would most likely have become cancerous. It was only the coil which bought it to my attention by aggravating it.

      In response to your coil, I am not a medical professional and so cannot give you medical advice on this issue, however as another woman who cares I will say that if you are continuing to have pain over 6 weeks later perhaps it is the body’s way of saying that this method of contraceptive is not right for you, It is a choice which only you can make in the end. I would suggest seeking the opinion of another GP AND A sexual health professional on what would be the best course of action. If you are still unsatisfied then you are within your rights to request an appointment with a gynaecological consultant to discuss your concerns in greater detail, with someone better qualified and equipped to solve/ treate them.

      If after following this process you still feel unhappy with the results and the cause of pain has not been discovered then you can look at removing the coil and seeing if the pain subsides and then perhaps seeking private medical help if you think this would be right for you. I must warn however that the costs of private healthcare are very high and not all healthcare insurance policies will cover gynaecological or fertility treatments so it is best to research this first if you do already have a healthcare insurance plan.

      I hope this helps

      Let me know if you require more information!

      Kind Regards
      Saschan

  4. Laura Hyde says:

    Saschan, I’m really sorry to hear about what happened to you. It’s awful. But thank you for starting up this site, there are quite a few problems of this nature within my family, me included, and it’s always worried me how hard it is to get advice when you’re younger – not many medical professionals seem to take you seriously!

    • 🙂 Thank you for taking the time to come and have a look I really appreciate it. I’m sorry to hear that you have similar problems within your family and affecting you personally, when i hear young women tell me things like this it makes me sad because if services were available sites like mine would have no need to exist but as long as the government and local health authority continue to underestimate the need for them and the emotional, psychological and physically damaging effects it has on young women i’ll continue to make this site grow and grow. If you ever need any advice or you want to talk i’m always here just email me i’ll leave you my number through facebook and also if you want to get involved and help raise awareness it would be really lovely. 😀 thanks for coming by

      • well to hv a multiple cyst in ovary is vry omcmon now dys wth sm hormonal disturbance..it has got d medical treatment wth Anti -oestrogen n othr COC combined oral contraceptive pills, according to patients will to get pregnant or not.! she could hv hormone Inj. as Pure FSH or hMG ,if she is craving fr a baby..!n to hv a big ovarian cyst or a chocolate cyst wth symptoms could b operated throughly..!she should b straight frwrd to d gynae c , fr a meticulous check up n further management ,,in ur townReferences : GP ( family physician ), intersted in gynaecology n practicing since 7 yrs

    • I just started fioolwlng your blog and that cyst looks all too familiar. I had a laparoscopy surgery (#2) about 10 days ago to remove a cyst. It looked exactly the same on the ultrasound and it happened to be on my left tube, not my ovary like it looked. Last time (Oct 2010) my RE drained it, but it came back like 2 months later. This time he completely removed the tissue. When he got inside the cyst he found there was a tumor that had grown from my ovary. It was benign, but I ended up losing my left tube. I can’t wait to have another ultrasound and not see that HUGE dark mass. Every one I’ve ever had has shown it. It got to 8 cm at one point, but I was completely asymptomatic. It sounds like you have had a lot of pain which really stinks. Best of luck for your surgery. I am already feeling so much better and it hasn’t been much time. I hope you recover quickly!

      • Thank you for following us! I am sorry to hear about your gynae problems, although it saddens me when I do come across other young women with gynae problems, It makes me happy that we can provide a place where we are united in our experiences and histories!
        Glad you are recovering quickly! and just to let you know I am also! have had good news recently and will not need anymore surgery soon so I am super happy right now! I hope your recovery continues to be as swift and successful as it is at present and hopefully the problems do not continue or come back!!!

        It’s nice to have contact with other Super Womb-en!!!

        Next time you have an appointment don’t forget your cape!!!

        Love
        Saschan
        xxx

  5. PeacefulSoul says:

    “Consider it nothing but joy when you fall into all sorts of trials, because you know that the testing of your faith produces endurance. And let endurance have its perfect effect, so that you will be perfect and compete, not deficient in anything.” James 1:2-4

  6. We extremely appreciate your site post. You will find dozens of techniques we could put it to proper use while using minimum effort with time and money. Thank you so much for helping have the post answer many questions we have experienced before now.

  7. I’m out of league here. Too much brain power on dislapy!

    • 😀 thank you for visiting my site i hope it has helped you in some way! it really means alot to me that you took the time to leave a comment aswell thanks:)

    • About 90% to 95% ovarian cysts are nebign, this means that they are not cancerous and were formed due to the normal ovary activity. As mentioned in the video, the minority of cases will have extreme dangerous symptoms. If interested in other useful videos on Ovarian Cysts, visit Symposier site (Physicians only), or share your videos and experience on the topic with our Medical Community.

Got an opinion? Share it with us!!

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: